"Initial Child" Referral Process

There is an additional way to register children you are currently working with. Use the Initial Child Referral Form. and NEC Child Count 2015.docx is National Deafblind Census Code Sheet.

By completing the categories required we can temporarily register the child with the national census as "pending" or "at risk" for one year.

  • Eligibility Letter/ NEC Description
  • Certificate of Eligibility
  • Handouts and key articles related to Deafblindness


You may begin the registration process by sending in the Initial  Form and Code Sheet  only. However, registration of a child who is deafbllind will only occur after all of the above documentation has been  received and  reviewed by NEC.

Once a Child has been registered and the necessary documentation obtained, NEC will send out the following to the child's family and service providers & related agencies:

  • Most recent vision / opthalmological report (or function vision assessment)
  • Most recent audiological report (or functional hearing assessment)
  • Most recent IEP, IFSP, ITP and other developmental documents
  • Documentation of etiology if available.

A. Individuals who may have multiple disabilities due to generalized nervous system  dysfunction, with documented hearing loss and vision loss. The child's etiology may be progressive in nature.

B. Individuals who have sensory loss of both vision and hearing (low vision, mild to moderate hearing loss).

C. Individuals who have a sensory loss of both vision and hearing, one of which is severe and the other less severe (20/200 acuity or greater; 71-90 dB or greater).

D. Individuals who have  sensory loss of both vision and hearing (low vision to total blindness; moderate to profound hearing loss).

E. Individuals who have sensory loss of both vision and hearing (legal blindness; severe or profound blindness).

* Central Auditory Processing Disorder (CAPD): Individuals who have difficulty with auditory perception of spoken language and other meaningful sounds in their environment. Such a diagnosis may be confirmed by an audiologist.

* Cortical Vision Impairment (CVI) : Individuals who have documented visual impairment caused by the disturbance of the posterior visual pathways and/or the occipital lobes of the brain. The degree of visual impairment can range from minor visual impairment to total blindness.

Who is Eligible for Technical Assistance?

Individuals from birth to age 22 who have any combination of the disabilities described below resulting in the need for  specialized services are eligible for services outlined withing the Individuals with Disabilities Act (IDEA) Part C, Section 622, 307.11. The following descriptions and classification codes apply to the chart.


Eligibility Chart and Classification Codes
Eligibility Definition

The New England Consortium defines deafblindness as follows:

"Children and youth having auditory and visual impairments, the combination of which creates such severe  communication and other learning and developmental needs that they cannot be appropriately educated in special education programs solely for children or youth with hearing impairments, visual impairments, or severe disabilities without  supplementary assistance to address their educational needs due to these dual, concurrent disabilities."

How to Register/ Refer a Child

Procedures for Registering a child with NEC

  If you suspect a child is not using his/her vision and hearing or who is "at risk" download the registration packet or Spanish registration packet.

(The registration packet is in PDF format, you may need to visit adobe.com to download Adobe Acrobat Reader if you do not have it installed.)

  1. Complete the NEC Initial Information Form and National Deafblind Census Code Sheet.
  2. Attach the following reports/documentation:



      3.  Send all of the above information to:

New England Consortium of Deafblind Projects

Attn: Project Assistant 175 N. Beacon St.

Watertown, MA 02472

Scanned documents can be emailed to NEC@perkins.org

Faxed forms can be sent to NEC at 617-972-7354

Child Registration

​   ​​The New England Consortium  for Deafblind Technical Assistance And Training (NEC)

                                                       A Deafblind Community of Practice

                              Serving Connecticut, Maine, Massachusetts and New Hampshire