By completing the categories required we can temporarily register the child with the national census as "pending" or "at risk" for one year.
You may begin the registration process by sending in the Initial Form and Code Sheet only. However, registration of a child who is deafbllind will only occur after all of the above documentation has been received and reviewed by NEC.
Once a Child has been registered and the necessary documentation obtained, NEC will send out the following to the child's family and service providers & related agencies:
A. Individuals who may have multiple disabilities due to generalized nervous system dysfunction, with documented hearing loss and vision loss. The child's etiology may be progressive in nature.
B. Individuals who have sensory loss of both vision and hearing (low vision, mild to moderate hearing loss).
C. Individuals who have a sensory loss of both vision and hearing, one of which is severe and the other less severe (20/200 acuity or greater; 71-90 dB or greater).
D. Individuals who have sensory loss of both vision and hearing (low vision to total blindness; moderate to profound hearing loss).
E. Individuals who have sensory loss of both vision and hearing (legal blindness; severe or profound blindness).
* Central Auditory Processing Disorder (CAPD): Individuals who have difficulty with auditory perception of spoken language and other meaningful sounds in their environment. Such a diagnosis may be confirmed by an audiologist.
* Cortical Vision Impairment (CVI) : Individuals who have documented visual impairment caused by the disturbance of the posterior visual pathways and/or the occipital lobes of the brain. The degree of visual impairment can range from minor visual impairment to total blindness.
Individuals from birth to age 22 who have any combination of the disabilities described below resulting in the need for specialized services are eligible for services outlined withing the Individuals with Disabilities Act (IDEA) Part C, Section 622, 307.11. The following descriptions and classification codes apply to the chart.
The New England Consortium defines deafblindness as follows:
"Children and youth having auditory and visual impairments, the combination of which creates such severe communication and other learning and developmental needs that they cannot be appropriately educated in special education programs solely for children or youth with hearing impairments, visual impairments, or severe disabilities without supplementary assistance to address their educational needs due to these dual, concurrent disabilities."
If you suspect a child is not using his/her vision and hearing or who is "at risk" download the registration packet or Spanish registration packet.
(The registration packet is in PDF format, you may need to visit adobe.com to download Adobe Acrobat Reader if you do not have it installed.)
3. Send all of the above information to:
New England Consortium of Deafblind Projects
Attn: Project Assistant 175 N. Beacon St.
Watertown, MA 02472
Scanned documents can be emailed to NEC@perkins.org
Faxed forms can be sent to NEC at 617-972-7354